The Global Health Institute of the University of Antwerp, a member of the Nodding Syndrome Alliance, maintains an active archive of scientific publications on Nodding Syndrome and other forms of Onchocerciasis-Associated Epilepsy (OAE).

archive of scientific publications

Since 2019 some members of the Alliance have been providing epilepsy care to thousands of people suffering from Nodding Syndrome and other forms of epilepsy in South Sudan.

All tools, guidelines, training materials, job aids, assessment checklists, etc. developed and adopted by these organizations are available at the following links:

Awareness Creation

Community Health Volunteers

  • CHV Training Material
  • Family Folder & House Hold Visit Forms
  • Monthly Reporting Forms
  • Printing instructions
  • Referral Forms

Epilepsy Clinics

  • Epilepsy Clinic Registers and Forms
  • Epilepsy Clinics Audit
  • Job Aids

WHO Resources

  • WHO Resources
  • WHO_mhGAP-EPILEPSY

Dissemination Workshop – August 2022

Other resources

The photos on this page are by Adrienne Surprenant

Nodding Syndrome Alliance:
Coming together to tackle Nodding Syndrome and other forms of epilepsy in South Sudan.

The Nodding Syndrome Alliance has received financial support from the Italian Agency for Development Cooperation (AICS), the BAND Foundation and Apotheker Helfen. This website was created with support of AICS. 

Nodding Syndrome Alliance
@ Amref Health Africa (Italy)
00198 Roma
Via Aniene 30
Phone: +39 0699704650
C.F.: 970 56 980 580
info@amref.it

Since 2019 Amref Health Africa leads the Nodding Syndrome Alliance.