The Global Health Institute of the University of Antwerp, a member of the Nodding Syndrome Alliance, maintains an active archive of scientific publications on Nodding Syndrome and other forms of Onchocerciasis-Associated Epilepsy (OAE).

Since 2019 some members of the Alliance have been providing epilepsy care to thousands of people suffering from Nodding Syndrome and other forms of epilepsy in South Sudan.

All tools, guidelines, training materials, job aids, assessment checklists, etc. developed and adopted by these organizations are available at the following links:

Awareness Creation

Community Health Volunteers

The photos on this page are by Adrienne Surprenant